Caregiver Resources
Caring for a loved one with a Parkinson's disease diagnosis can be challenging—physically and emotionally.
It's important for caregivers to not only learn about symptom management, but how to attend to their own mental health needs and find support. Below, you'll find different options for caregiver support.
Guides and Worksheets
FAMILY CAREGIVER ALLIANCE
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Caregiver Guide
A free guide detailing Parkinson's symptoms, intervention, treatment, and caregiver tips.​
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The Emotional Side of Caregiving
Fact sheet by Donna Schempp, LCSW, identifying common emotions felt by caregivers, and how to best address them.​
PARKINSON'S FOUNDATION
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Care Partner Guide
A free guide to help caregivers build a support network and work with their loved one to manage Parkinson's disease as a team. ​
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Care Partner Worksheet
Include resources for medication management and symptom tracking, as well as those geared towards care partner support (ex. self check-ins, burnout reflection).​
Support Networks
​MY PARKINSON'S
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Hub for caregiver support and advice, research information, caregiver checklists, and a caregiver discussion forum.
Access the site here​​
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PARKINSON & MOVEMENT DISORDER ALLIANCE SUPPORT GROUPS
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Multiple support groups in Southern California convene to allow care partners to build an in-person community.
YouTube Channels
THE MICHAEL J. FOX FOUNDATION FOR PARKINSON'S RESEARCH​
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Hosts free live webinars on Thursdays at 12 p.m. ET. Also offers "Ask the MD" segments in which a movement disorder specialist answers questions related to Parkinson's disease.​
PARKINSON'S FOUNDATION
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Includes conversations with care partners and tips for managing symptoms.​